Rates of mental health concerns among individuals assessed at the GoodHope Ehlers-Danlos Syndrome Clinic
Source: Orphanet Journal of Rare Diseases
Intracranial pressure monitoring in patients with spontaneous onset of orthostatic headache
Source: Journal of Headache and Pain
Quality of life in people with syndromic heritable thoracic aortic disease and their relatives: a qualitative interview based study
Source: Orphanet Journal of Rare Diseases
The Impact of Pain on Everyday Activities of People With Hypermobility Spectrum Disorders or Hypermobility Ehlers Danlos Syndrome
Source: European journal of pain (London, England)
Quality of Life With Ehlers-Danlos Syndrome/Joint Hypermobility Syndrome: A Systematic Review of Psychosocial Interventions
Source: Musculoskeletal Care
For Patient Families
To support patients and caregivers, Elsevier Health is making the latest research on these rare disorders available upon request at no cost.
Learn More
Note:
User acknowledges that these materials are provided for use at no charge as part of Elsevier’s efforts to support healthcare providers and patients. The information contained within the website is intended as a supplement to, and not a substitute for, the knowledge, expertise, skill and judgment of healthcare professionals involved in patient care. The content within this page may not be re-used, modified or re-distributed without prior written permission.
Cookies are used by this site. To decline or learn more, visit our cookie notice.
Copyright © 2024 Elsevier, its licensors, and contributors. All rights are reserved, including those for text and data mining, AI training, and similar technologies.
